Mom forced to put career on hold to care for daughter with rare kidney condition —now pair achieve lifelong dream together
For years, Ambrealle Brown was forced to put her dreams of becoming a nurse on hold due to a life-threatening kidney disease that left her temporarily incapacitated.
Amid inner doubts about whether she would ever return to living a normal life, Brown’s mother stepped in and offered to donate her kidney. Doctors performed Louisiana’s first robotic kidney transplant, giving Brown a renewed chance at life and Nija Butler the opportunity to see her daughter thrive.
Nearly two years after the successful transplant, the Louisiana mother and daughter shared another journey. Donning white caps and gowns, they walked across the stage together in Baton Rouge and graduated from nursing school.
“As parents, we always tell our children, we would die for you, and kids don’t always understand that kind of love,” Butler, 48, said. “I would have given anything for her to live. I mean that from the bottom of my heart, without a second thought.”
During an interview with The Associated Press last month, the two women reflected on their journey together and the challenges they have overcome.
The Louisiana mother-daughter duo has always been close. Butler gave birth to her daughter when she was in high school, and as a result, they grew up together. Butler poured herself into raising her daughter and son, and Brown planned to become a nurse.
But in 2016, when Brown was diagnosed with Focal Segmental Glomerulosclerosis (FSGS), a rare kidney disease that can cause kidney failure, everything changed. Her prognosis quickly worsened. One day, Brown, who was taking prerequisite courses for nursing school, felt her legs tighten to the point that she could not move.
Shortly after, Brown’s doctor delivered detrimental news: Brown would either need to start dialysis or have a kidney transplant to survive. The average wait for a kidney transplant in the U.S. can vary from two to five years, or longer, depending on certain factors, based on data from the National Kidney Foundation.
Brown desperately hoped for a new kidney. But as she awaited news of a transplant, she was forced to turn to dialysis — a treatment that lasted nine to 13 hours, every single day. Brown’s daily life was limited, and she had to stop school.
After years of dialysis, Butler said she saw a shift in her daughter, who was typically optimistic.
“It was like she wanted to give up,” Butler recalled about a phone call with her daughter. “She was tired of just being connected to a tube that her life revolved around.”
Although doctors had previously told Butler she likely wasn’t a match to be a kidney donor for her daughter, she still scheduled an appointment to get tested the next day. She opted not to tell her daughter, not wanting to get her hopes up in case it wasn’t a viable match.
Soon after, Brown got news she had been waiting five years to hear — she was getting a new kidney. She called her mother to tell her, but her mom already knew. Confused, Brown asked her mother how she would know that.
“It’s me,” Butler responded.
The two underwent surgery in March 2023, with Tulane University School of Medicine doctors performing the state’s first kidney transplant using a robotic surgical system. The practice offers increased precision so the procedure is minimally invasive, hoping there will be less pain and a speedier recovery.
After the successful surgery, Brown returned her focus to school. Her mother decided to get her registered nurse’s license as well.
For 16 months, they were attached at the hip. They sat together, studied together, and, in April, graduated from the Baton Rouge General School of Nursing together.
“I couldn’t have done it without her because nursing school is hard,” Brown, 34, said. “I’m happy that I was able to go through that milestone with her side by side.”
Brown has accepted a job at a burns intensive care unit, and Butler is continuing her career at a psychiatric facility.
The ladies hope their story inspires others to never give up and also spread awareness about the importance of medical testing and the donor and transplant process.
“Thank you for giving me life twice,” Brown said to her mother. “I have to keep saying that because you gave me a second chance at life, and most people don’t get do-overs.”
Butler wiped away a tear and, without skipping a beat, said, “And I would do it again.”
